Each week we will be picking members to spotlight to tell their Alzheimer's story and why they are running in this year's New York City marathon. Check in each day for new updates on who will be spotlighted and get to know your teammates...(each person is picked at random)
As a father, he has always been
supportive, pushing me to do my best, and incredibly loving, even putting up
with my rebellious teenage phase. He has always been a huge sports fan and he
made time to come to almost all of my field hockey and softball games, even if
I never left the bench. As you can imagine, when I discovered running and
racing- he was thrilled! To this day we talk over (read- I talk at him) my
races and training plans, mile by mile, and he doesn't seem to mind.
In 2010, I noticed we weren't having
the same epic father-daughter talks that we used to have, in fact he was
talking very little and mixing up words when he did. The whole family decided
something was up and we needed to get it checked out. After batteries of tests
my father was diagnosed with Fronto-Temporal Dementia. He ended up retiring
early, as it was getting harder and harder for him to express his thoughts.
Over 4 years later, his once endless vocabulary is now quite limited and he
can't really get around anymore.
Dementia is devastating. My mom is an
amazing caretaker, and works incredibly hard, but I can see the toll it takes
on her. My parents pictured their retirement as a time filled with travel, and
learning, and grandkids. Unfortunately it has not turned out that way for them.
For me, the thing that still feels the hardest is the helplessness of it. There
is nothing I can do to stop the progress of the disease. I often feel hopeless
and frustrated and hurt.
Even with all the tough stuff, I have
really bright times when I realize how lucky I am to still have my dad around.
He is still living at home with my mom and their apartment is only 6 long
blocks from my husband and me, and we go over there a lot to just hang out or
watch the Mets game. I am so thankful that he was there to walk me down the
aisle and meet my beautiful niece. I am thankful that he can still laugh at my
stupid jokes, enjoy homecooked meals, and listen to me talk about each and
every team training run.
This is my first time fundraising for a race. It feels
like a really natural fit. Running helps when I feel sad, or angry, or that
life is incredibly unfair. Its amazing that by raising money with a run I can
actually DO one little something to help.
Hannah,
ReplyDeleteOn our run over the Queensborough back from Roosevelt Island, I tapped into your energy to get myself back over the bridge. Now reading your post I realize how fortunate your dad is to have you to help him through this difficult part of his "run".
I am very proud to be your teammate.
Nancy